i was all state in 4 sports in high school. & had scholarship offers in all of them. i 1st started showing what i now know to be ME symptoms in high school. i was lucky in that things followed a relapsing remitting course. but i started cutting things out in college. to lighten my load.
i still traveled the US. hiked mountains. the grand canyon. i played high level sports. still able to walk my dog until 2 years ago. even though i was clearly declining. with my mystery disease.
the 1st year severe, i could do stairs. & bathe or shower. a year ago when the rest of my life fell apart, i sank deeper into ME. i had to make the living room my bedroom. those stairs there – may as well be to the moon.. i still crawled up them for awhile to bathe. until i relapsed in the winter on a drug. & i lost the ability to safely do the stairs & bathe. since ME has a payback if you go past your limits. & it can be fierce. & short term or long term.. or permanent.
today, i decided to climb the mountain.. & to bathe. been making do with sponge baths. i can’t tell you how huge & glorious it felt to do this. & to see the view from the 2nd floor again. i was very careful. but given how ill i am, i know this put me outside my limits. so already i am in flu like post exertional pain. which i hope it is brief & doesn’t worsen.
next time you shower or bathe – know what a true & glorious thing that is… & keep your fingers crossed for me. maybe, if i am lucky, i will be allowed more mountains to climb to get to waterfalls.
& to see the tree tops again.
(i should note, that i have word out trying to find a safe small one floor rental to live in. i jointly own this big old beautiful home with my ex. it really deserves a nice family. there are so many beautiful features & windows – old wavy glass 1920s era – just glorious. i have been blessed to have it as my home for 6 years.)